no one feels my pain
knows my sorrow
has experienced
my joy
understands my bliss
as I have …… ME
I live as ME with FSHD
I can spiral down
like a leaf ….. falling
to the ground
from a tree ~
I can see
my mind explode
like the birth
of a new star
a speckle
in the universe
amid the unfathomable
without notice
I am ME
uniquely I fly
like the butterfly
through the meadow
I am ME
uniquely I crawl
like a worm
along the dirt
in the scorching sun
no one feels my pain
knows my sorrow
has experienced
my joy
understands my bliss
as I have …… ME
I live as ME with FSHD1
just saying ….. ~peace out~
Words by ~Keith Alan Hamilton~ (~KAH~)