no one feels
my pain
knows
my sorrow
has experienced
my joy
understands
my bliss
as I have …… ME
I live as ME with FSHD
I can spiral down
like a leaf ….. falling
to the ground
from a tree ~
I can see
my mind explode
like the birth
of a new star
a speckle
in the universe
amid the unfathomable
without notice
I am ME
uniquely I fly
like the butterfly
through the meadow
I am ME
uniquely I crawl
like a worm
along the dirt
in the scorching sun
no one feels
my pain
knows
my sorrow
has experienced
my joy
understands
my bliss
as I have ….. ME
I live as ME with FSHD
peace out
Words by ~Keith Alan Hamilton~
FSHD-1: DUX4 Gene Mutation – Protein Toxicity