back in the day
that energizer bunny
couldn’t keep it going
like me
ENERGY
it flowed through me
as if I was the superhero
Captain Atom
willpower was the nitro
in my reserve tank
it fueled me
to do anything
then the genetic demon
(FSHD-1)
lurking inside of me
since birth
disguised as something else
triggered
like a time bomb
that sucked out
all my energy
to the point
I became
a lethargic sloth …..
that turned me forever
into a “spoonie”
someone
who monitors
the DEPLETION
of his
precious energy
every second of the day
chronic pain and fatigue
possesses me
like I am
in need of
an exorcist
although ~ the curse
has no cure
the muscles around
my lungs ….. dystrophy
I just can’t breathe fully
a carbon dioxide
druggie ~ I’ve become
where my brain
floats around in the fog
and nap time
has become a refuge
for rejuvenation
that feels temporary
at best …..
sometimes
I dream
that I’m still
back in the day
that energizer bunny
couldn’t keep it going
like me
ENERGY
it flowed through me
as if I was the superhero
Captain Atom
willpower was the nitro
in my reserve tank
it fueled me
to do anything
Facioscapulohumeral muscular dystrophy ~ SUCKS
just saying …..
peace out
Words by ~Keith Alan Hamilton~